Rare Voices Australia
Rare Voices Australia
(RVA) is the national peak body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as health, disability and other systems that work for people living with a rare disease. Their person-centred focus sees them working with key stakeholders.
Vision and mission
RVA is dedicated to working with all key stakeholders to drive the best outcomes for Australians living with a rare disease.
RVA provides collaborative leadership for the development and implementation of rare disease policy in Australia.
How Rare Voices Australia can help
RVA provides collaborative leadership for the development and implementation of rare disease policy in Australia. RVA is leading the collaborative implementation of the Australian Government's National Strategic Action Plan for Rare Diseases (Action Plan). A key deliverable of the Action Plan is the Rare Awareness Rare Education (RARE) Portal, Australia's growing national resource for rare diseases.