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HeartKids is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).

They bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.

Vision and mission

HeartKids seeks to give every child, teenager, and adult in Australia with congenital or childhood-onset heart disease a fighting chance to live a long, healthy, and fulfilling life.

How HeartKids can help

HeartKids offer:

  • Direct support and guidance from HeartKids Support Coordinators across Australia to assist in navigating journeys with childhood-onset heart disease (CoHD)
  • Education and information resources, including our Resource Library with factsheets, podcasts, and videos relating to CoHD
  • Mental health support for people and their families impacted by CoHD
  • HeartKids Helpline services by phone, webchat and email, five days a week
  • In-hospital and community events, morning teas, and social connection opportunities for those on a journey with CoHD.

Information/help lines

  • Call 1800 HEARTK (1800 432 897) Monday to Friday, 9am to 5pm, AEDT/AEST
  • Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST

Programs, apps and tools

  • UpBeat Teen App An app designed with help from young people with heart conditions. It’s your go-to for tracking your health, appointments, and important contacts. Plus, find resources for transitioning to adult healthcare and connecting with teen events and support groups—all in one convenient app.

Recommended links

This information was originally published on healthdirect - HeartKids.

Last reviewed: May 2024

Information from this partner

Found 12 results

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Information and key facts about childhood heart disease.

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Information to help parents of children with heart conditions prepare for starting school

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CHD and Neurodevelopment - HeartKids

Information for families on how congenital heart disease (CHD) can impact development in children

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Navigating a new diagnosis - HeartKids

Information for parents or carers who have recently received a new diagnosis for their child

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How HeartKids can support you - Easy Read - HeartKids

Information about HeartKids and the help available through our teams

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Pregnancy for people with childhood onset heart disease - Easy Read - HeartKids

Pregnancy and Childhood-onset Heart Conditions: Guidance for parents-to-be with CoHD

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How HeartKids Can Support You - HeartKids

HeartKids is the only organisation in Australia dedicated to supporting families impacted by CHD

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About childhood onset heart disease - HeartKids

About Childhood-onset Heart Disease: Information to help build understanding of childhood heart conditions

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Immunisation - HeartKids

Information about immunisation and why it is important for people with childhood heart disease to get vaccinated

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Learning of a new diagnosis - HeartKids

Information for Aboriginal and Torres Strait Islander families who have a child with a heart condition

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Call us and speak to a Maternal Child Health Nurse for personal advice and guidance.

Need further advice or guidance from our maternal child health nurses?

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The information is not a substitute for independent professional advice and should not be used as an alternative to professional health care. If you have a particular medical problem, please consult a healthcare professional.

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