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HeartKids

HeartKids is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).

They bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.

Vision and mission

HeartKids seeks to give every child, teenager, and adult in Australia with congenital or childhood-onset heart disease a fighting chance to live a long, healthy, and fulfilling life.

How HeartKids can help

HeartKids offer:

  • Direct support and guidance from HeartKids Support Coordinators across Australia to assist in navigating journeys with childhood-onset heart disease (CoHD)
  • Education and information resources, including our Resource Library with factsheets, podcasts, and videos relating to CoHD
  • Mental health support for people and their families impacted by CoHD
  • HeartKids Helpline services by phone, webchat and email, five days a week
  • In-hospital and community events, morning teas, and social connection opportunities for those on a journey with CoHD.

Information/help lines

  • Call 1800 HEARTK (1800 432 897) Monday to Friday, 9am to 5pm, AEDT/AEST
  • Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST

Programs, apps and tools

  • UpBeat Teen App An app designed with help from young people with heart conditions. It’s your go-to for tracking your health, appointments, and important contacts. Plus, find resources for transitioning to adult healthcare and connecting with teen events and support groups—all in one convenient app.

Recommended links

This information was originally published on healthdirect - HeartKids.

Last reviewed: May 2024

Information from this partner

Found 14 results

Childhood Heart Disease- the facts

Information and key facts about childhood heart disease.

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Congenital heart disease: Causes - HeartKids

Information about the causes of congenital heart disease.

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Navigating a new diagnosis - HeartKids

Information for parents or carers who have recently received a new diagnosis for their child

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Easy Read: How HeartKids can support you - HeartKids

Information about HeartKids and the help available through our teams

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Learning of a new diagnosis - HeartKids

Information for Aboriginal and Torres Strait Islander families who have a child with a heart condition

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CHD and Neurodevelopment - HeartKids

Information for families on how congenital heart disease (CHD) can impact development in children

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About childhood onset heart disease - HeartKids

About Childhood-onset Heart Disease: Information to help build understanding of childhood heart conditions

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Types of Childhood-onset Heart Disease Conditions | HeartKids

Learn about the different types of congenital heart disease and acquired heart disease in childhood. Discover trusted information on CoHD conditions.

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CoHD, developmental delay and the NDIS Early Childhood Approach - HeartKids

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Immunisation - HeartKids

Information about immunisation and why it is important for people with childhood heart disease to get vaccinated

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