HeartKids
HeartKids
is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).
They bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.
Vision and mission
HeartKids seeks to give every child, teenager, and adult in Australia with congenital or childhood-onset heart disease a fighting chance to live a long, healthy, and fulfilling life.
How HeartKids can help
HeartKids offer:
- Direct support and guidance from HeartKids Support Coordinators across Australia to assist in navigating journeys with childhood-onset heart disease (CoHD)
- Education and information resources, including our Resource Library with factsheets, podcasts, and videos relating to CoHD
- Mental health support for people and their families impacted by CoHD
- HeartKids Helpline services by phone, webchat and email, five days a week
- In-hospital and community events, morning teas, and social connection opportunities for those on a journey with CoHD.
Information/help lines
- Call 1800 HEARTK (1800 432 785) Monday to Friday, 9am to 5pm, AEDT/AEST
- Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST
Programs, apps and tools
- UpBeat Teen App An app designed with help from young people with heart conditions. It's your go-to for tracking your health, appointments, and important contacts. Plus, find resources for transitioning to adult healthcare and connecting with teen events and support groups—all in one convenient app.