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HeartKids is the only national not-for-profit organisation solely focused on supporting and advocating for all people impacted by childhood heart disease, one of the largest causes of infant death in Australia.

Their support is a commitment for life because there is no known cure. People with congenital heart disease face unique challenges for their entire life.

HeartKids purpose is to make a real and lasting impact for the Congenital Heart Disease (CHD) community.

Vision and mission

HeartKids seek to give every child, teenager, and adult in Australia with congenital or childhood acquired heart disease a fighting chance to live a long, healthy, and fulfilling life.

HeartKids drives funding to unite researchers, clinicals, heart kids, families and communities through research and action programs.

How HeartKids can help

  • Peer support, with programs in most metro and regional areas nationally
  • 1:1 Family Support Coordination providing practical information and guidance from our dedicated teams
  • A range of information and resources relating to: hospital stays, travel and accommodation subsidies, and connection to other support networks and community-based agencies
  • A diverse library of factsheets relating to specific conditions, as well as resources to support a new diagnosis, growing up with a heart condition, and living as an adult with CHD.

Information/help lines

  • Call 1800 HEARTK (1800 432 897) Monday to Friday, 9am to 5pm, AEDT/AEST
  • Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST

Programs, apps and tools

  • UpBeat Teen App a free app designed for young people with a heart condition who are starting to manage their lives and health care more independently

Recommended links

This information was originally published on healthdirect - HeartKids.

Last reviewed: January 2023

Information from this partner

Found 24 results

Pulmonary Valve Disease | HeartKids

Pulmonary valve disease is a condition in which the pulmonary valve doesn't work properly, preventing blood flow to your lungs. Learn more about it.

Read more on HeartKids website

Congenital Heart Disease | Congenital Heart Defects | HeartKids

Congenital heart disease is a common birth disorder that affects 2400-3000 Australian babies every year. Read more about the impact of this defect.

Read more on HeartKids website

Kawasaki Disease

Kawasaki disease is a serious illness that affects hundreds of Australian children each year and many thousands worldwide. The most serious complication of Kawasaki Disease is damage to the coronary arteries, which supply blood to the heart.

Read more on HeartKids website

Cyanotic Congenital Heart Disease (CCHD) | HeartKids

Cyanotic congenital heart disease (CCHD) refers to birth defects that result in a low blood oxygen level & causes a bluish skin colour. Learn more about it.

Read more on HeartKids website

Atrial Septal Defect | HeartKids

Atrial septal defect is a birth defect that occurs when there is a hole in the septum that divides the upper chambers of the heart. Learn more about it.

Read more on HeartKids website

Atrio-ventricular Septal Defect (AVSD)

Atrio-ventricular Septal Defect (AVSD) is a defect in which there are holes between the chambers of the right and left sides of the heart, and the valves that control the flow of blood between these chambers may not be formed correctly.

Read more on HeartKids website

Mitral Valve Disease | HeartKids

Mitral valve disease occurs when the mitral valve doesn't work properly, allowing blood to flow back into the left atrium. Discover more information.

Read more on HeartKids website

Heart Disease Resources & Information | HeartKids

Find resources and more information on heart disease from HeartKids. Read fact sheets & more, all tailored to help assist in making lifestyle choices.

Read more on HeartKids website

Grief Counselling | Family & Community Services | HeartKids

HeartKids provides family & community support services after the loss of a child. You need not walk this road alone. Contact us today for guidance.

Read more on HeartKids website

Coarctation Of The Aorta | HeartKids

Coarctation of the aorta is a narrowing of part of the aorta, resulting in the heart pumping harder to force blood through. Learn more about it.

Read more on HeartKids website

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